I never expected to take care of my mother; after all, she had always cared for me. The thought of her giving up her independence — and, to some degree, her spirit — was unthinkable to both of us. Yet, in 2017, at the age of 90, she moved into my home. I had become one of the about 40 million Americans who provide unpaid care to older adults and adults with disabilities. Almost as stressful was the process leading up to this decision. As November is National Caregivers Month, I hope my story can help others who are facing this transition.
Approach it holistically
As you are identifying the best course of action for your loved one and their personal situation, there are certain things to keep in mind. While there are certainly practical things that must be done, focusing only on this part may hinder everyone.
- First, consider the people involved in the transition. What are everyone’s concerns, and what is their unique perspective?
- What is the purpose, the desired result? Is everyone in alignment?
Sometimes, articulating your purpose can be difficult. However, it is invaluable. For those with complex family dynamics, a mediator may be helpful. If you or your parents have a trusted adviser (financial planner, attorney or doctor), they can be a good choice. When beginning a discussion, remember:
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- Be patient
- Every attempt at conversation has value
- You do not have to cover everything at once
For additional guidance on having tough conversations with aging loved ones, this article from AmeriCare is an excellent resource.
Next, evaluate the parts. What responsibilities should be transitioned and to whom? Can responsibilities be shared? In my case, my family and I agreed that I would be responsible for my mother’s medical and financial care. However, other family members were often available to help with her daily needs and give me an occasional break, and my sisters contributed financially.
Finally, move forward with the practical steps, which are unique to every situation. If a move is involved, this will mean choosing the best place, whether with family or in a care facility. If with family, modifications to the home may be necessary; and, if a facility, it will take time to choose the best one. A Place for Mom is a free service for families who need help in finding the best fit. Whatever the decision, it will determine the next steps.
Another practical item is estate planning. It is imperative that your loved one’s will, advanced healthcare directive, HIPAA authorization and financial power of attorney are in good order. The primary caregiver may or may not be executor of the will but should be appointed in each of the other documents.
Moving forward
Once a decision is made and the transition has begun, it doesn’t mean your work is done. In fact, the situation will continue to evolve. I was fortunate that my mother’s move went smoothly, and once she agreed to give up her home, she was content.
However, three things continued to present challenges: her declining health, my well-being and financial obligations. Although we went into it believing we had imagined every eventuality, it is impossible to do so. The key is to recognize when things are changing and seek help. Oftentimes, all three challenges can be abated simultaneously — in our case, through hospice care.
Hospice care is often available even when death is not imminent, and my mother qualified. Since I continued to work full time, it was helpful to have a volunteer visit on the days I was out. Whether you find yourself at the beginning of your caregiver’s journey, or further along the path, try not to project too far into the future, which will invariably increase your anxiety in the present. Most important, remember that it is OK, even necessary, to ask for help.
The hospice program also supplied a social worker, who was there as much for me as for my mother. He offered an ear when I needed to talk — or vent — and he understood what I was experiencing. Even in the best of circumstances, there will be difficult days, so remember to nurture your own support system and practice self-care.
Self-care means different things to different people, but some components are universal. I was surprised at how often I forgot to eat or found myself actually holding my breath. Our social worker was careful to remind me to continue to engage in the things that brought me fulfillment, however small.
Lastly, give yourself permission to take a few days off. Hospice offered short-term residential care, but a family member might also take over, or you might consider hiring a private nurse or companion.
Although Medicare covered most of the costs, there were times when private certified nursing assistants (CNAs) were needed. Some ways to avoid depleting your own financial assets are to evaluate what assets your loved one has, as well as research any additional aid they may qualify for. If you can contribute financially, consider how your siblings may be able to share in the cost or assist in other ways. It is important to remember that there are organizations such as Administration for Community Living that can help, whatever challenges your situation may present.
Caring for my mother during the 14 months she lived with me was one of the most difficult things I have ever done, but also one of the most rewarding. As we celebrate National Caregivers Month, I hope that everyone navigating this journey remembers to give themselves some grace during this challenging time.
Securities offered through LPL Financial, member FINRA/SIPC. Investment advice offered through Merit Financial Group, LLC, an SEC registered investment adviser. Merit Financial Group, LLC and Merit Financial Advisors, are separate entities from LPL Financial. The opinions voiced in this material are for general information only and are not intended to provide specific advice or recommendations for any individual.
Kelly Gallimore is solely an investment advisor representative of Merit Financial Advisors and not affiliated with LPL Financial. Any opinions or views expressed by Kelly Gallimore are his/her own and are not those of LPL Financial.
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